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The Frontotemporal Dementia Support Group is particularly directed towards carers who are coping with behavioural changes in a partner, family member or friend as a result of frontotemporal dementia.
However, other dementias can also lead to behavioural problems, and whilst we are happy to support people wherever possible, information about those dementias and support can also be found at the following sites:
www.parkinsons.org.uk/ www.lewybody.org [ Lewy Body Dementia ]
www.pspeur.org [ Corticobasal Degeneration ]
www.mndassociation.org/ [Motor Neurone Disease ]
www.alzheimersresearchuk.org
www.alzheimers.org.uk
Caring for people with frontotemporal dementia is hard, there are few facilities tailored for the younger sufferer and those are not always appropriate for people with frontotemporal dementia. Also there are no specific treatments yet for frontotemporal dementia. All this adds to the distress, isolation and burden of caring. The FTDSG tries to decrease the burden by providing information and support.
The Frontotemporal Disease Support Group incorporates:
Behavioral Variant Frontotemporal Dementia [including Pick's Disease]
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Primary Progressive Aphasia , which includes: Progressisve Non-Fluent Aphasia, Semantic Dementia and Logopenic Aphasia
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Alcohol related dementia
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The FTDSG is under the umbrella of The National Brain Appeal [formerly the National Hospital for Neurology and Neorosurgery Development Foundation] Registered Charity Number 290173
The FTDSG works closely with the Association for Frontotemporal Degeneration , an American group dedicated to the support of people with FTD and their carers. Please also visit their site at www.theaftd.org for more information about the disease.
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